Posted in Autsim, Daily update

Failing relationships… 

Hola (take thirty-one) Amigos!

Don’t worry!! Me and my boyfriend are okay!!

After a load of crap I’ve been dealing with by friends I felt it was only right to post a blog on it. Writing helps me relieve the stress so yous lot just have to put up with it! Would you prefer a spam or no post at all?

It’s a tough one. A really tough one. Being friends while struggling with PDA. Or any type of autism for that matter. Friendship isn’t easy, not at the best of times for the most ‘normal’ people. It means constantly compromising, it means making other people happy and sometimes it even means arguing. However, arguing shows you care – it’s horrible, excruciating and aggravating but it’s a normal aspect of life. It’s important, it’s necessary to fight for those you love. As clichè as it is and as much as you hear it, people argue because they’re fighting for each other, not against each other. Sometimes those arguments seem the worst ever but forgiveness is always an option.

I’ve been distancing myself from friends for what seems like forever, it’s those times when bad things happen elsewhere and you feel the need to be alone. It’s been like that a while for me. I’ve been struggling with other things on my mind so I’ve been separating myself from friends and the drama that comes with most girls at the age of 17. However, it all came backfiring to me last week, when my ex sent a horrid text saying how I was losing everyone. I knew what he was saying was right but I wasn’t going to admit that, he was only saying it out of spite anyway. Truth be told, the only reason I’ve been drifting from them is down to him. Being in the same friendship group as your ex is not enjoyable, let me tell you. The demands of trying to stay civil while not being too friendly is not nice. My friends seem to be getting off with him left, right and centre and it’s not nice to see whether or not you’re fully over them, especially when they’re your so called ‘friends’. So, my ex put me into WW3 as I asked all my friends what was up and if we were okay (to which I learned only 2 were annoyed) and then he decided not to message me back, to say to other mutual friends of mine and his that he wasn’t getting involved. Nothing like dropping your ex into arguments and then pi**ing off elsewhere is there!

However, today brought forgiveness. It brought me a new frame of mine. I apologised to one of my friends for my actions and explained I was only isolating myself (Whether I think she did wrong or not I didn’t mention). Sometimes I think forgiving and forgetting is the best possible option. I know if I stick to my usual stubborn self I’m only going to regret my decisions in the long run..when I go to Reading festival with both my ex and our friendship group and when we go back to school. It’s something I need to do so it’s not playing on the back of my mind all summer.

I can’t stress enough how tricky any relationships are to keep when you have PDA. The demands are tough and never ending but sometimes tricky friendships make everything so much worse. Being demanded to be friendly non stop at school is another barrier for us – one that many don’t even spare a second thought to. I just need to stress that it’s okay to find them difficult, it’s completely normal to everyone, even more so to those with autism. Sometimes it seems the best option to keep to your stubborn guts during the argument but it’s also important to remember the benefits forgiving and forgetting will give you in the long run. I’m not saying don’t stick up for yourself because that’s vitally important and a trait that’ll be so useful over time. However, sometimes you have to prioritise your battles and when you’re battling against the demands everyday, you can’t afford a separate fight.

Please remember – relationships and friendships that are supposed to be…will be.

Sorry about the rambling post. I needed it off my chest.

Thank you – email me abigailbrookshalling@gmail.com for absolutely anything!

Abigail J

X X X

Posted in anxiety, Autsim, Daily update

The PIP fight..

Hola (take twenty – nine) Amigos! 

It’s PIP time in my household, about a month ago me and mum fought for some money to keep us going. So mum can stay at home and not have to work because she’s my backbone. There’s not much I ask for in this life but we really could do with a bit more money as mum doesn’t get an income. And like most PIPs, we’ve been rejected…

My mums started the process now to challenge it, but of course it’s a battle that we could’ve done without. For those who aren’t familiar with it, you need 8 points for minimum money and 16 for maximum. I got 2. None for medication, even though I don’t know half the names of the ones I take and my mum is the one who provides me with them downstairs every morning next to a drink. We had no points for money even though it literally burns a hole through my pocket and I really struggle to sort it. In the letter we also had the phrase ‘with Abigail doing a levels it’s unlikely she’s reaching maximum struggles’ 1) I have to stay in education until I’m 18, unfortunately it’s illegal for me not to 2) The reason I’m at a levels is because I couldn’t deal with the transition to a different and new college. 

Again, it’s a fight we really don’t want to have. With mum always at home because I need her here for me there should be some money coming in for our household. Something’s got to give. Not only does it mean Mum’s going through the stress of writing a challenging letter, we all have to go through her anger and upset from it.

 Today on the way back from hospital she went ‘abs I’d have been better leaving you under the table all them years ago because you’d be in a better financial state just now’ she then went on to cry. It’s horrible seeing her like that and she knows deep down that she did the right thing by moving me on to school and now I have the skills to get a job easily whereas I wouldn’t have. But, god it hurts. In the meeting you have to look like a complete moron to even be in with the slightest chance of acceptance, it’s dehumanising and disgusting that if someone knows what time of day they have their tablets and they’re wearing jeans then they’re fine. What type of logic are they working off? It’s something that I can’t really sort but I do have to be here while my mum, for the second time, reports on all the worst things about me and when I walk past the computer screen and read a sentence it really isn’t a nice one. It hurts to fight for some money that we really need to keep me sorted. If my mum hadn’t have been at home all this time for pick ups and to catch my tears, I’d definitely not be the person I am today, but instead they continue to stay so tight on the money they have which leaves the rest of us struggling. 

It’s hard on all of us but it’s a battle we’re gunna have to take on head first.. 

Thank you. 

Abigail J 

                                  X  X  X 

Posted in anxiety, Autsim

Down days..

Hola (take twenty – eight) Amigos! 

It’s been a weird several days. I remain in this kind of fake bubble of no emotions. I’m not talking to people, I’m just shutting everyone else out. My mum said today ‘abs I wish sometimes you’d cry when you were upset rather than just being quiet for days’ and she’s got a point. At the moment it very much seems like I’ll be stuck like this forever but I know I won’t. It’ll pass just like every other one has. It’s been stressful – emotions are all over the place and I’m lucky if I get my head to stop whizzing around for 10 minutes. I need a break from it all but it just isn’t possible. That’s the thing with PDA; usually later on in school terms, after the demands pile and pile up,  everything just reaches maximum anxiety level and there just isn’t anywhere else it can go. There’s down days for everyone but we seem to go to a really low couple of weeks until we drag ourselves back out of it. But getting yourself out of a dark phase is a demand so it’s all one vicious and f**ked up cycle. 

I very rarely notice how much my PDA affects me…I guess this is one of them… 

Thank you 

Abigail J 

                              X X X

Posted in anxiety, Daily update

Heartbroken..

Hola (take twenty – seven) amigos! 

Last night was hard. Really hard. I broke up with my boyfriend of 18 months because I need to put myself first. It really hurts. My whole world feels like it’s caved in around me but I can’t put all my happiness in the hands of that one guy. It’s time to put me first, to sort out my mental health. I’ve broken my own heart and even worse I’ve smashed the heart which belongs to the guy I love. I haven’t written us off forever and I made that so clear. He knows I struggle but he doesn’t know of my PDA, anxiety or SAD. It really kills me to know he’s upset and the texts I’ve received throughout the day have made a sickness form within me that I never thought was possible. I wish he hated me because it’d make this a hell of a lot easier..but he’s too lovely for that. I thought if it was my choice I’d be okay but the guilt is just adding to this undeniable pain that’s circling throughout me like a tornado. The face I saw last with his tears is the only thing ringing round my mind and I’m finding it impossible to focus on something else. However, what can I do? I have to have me time and sort myself out just now. I’m at a low point and whether that’s because of a level stress, it being January’s (doesn’t bode well with SAD) or if it’s just a low point again, I still have to rest and recorporate. My heart hurts like it’s being repeatedly smashed with a sledge hammer but I’ve got to help myself before I can be with someone. My vision is used to being blurred from these tears that don’t seem to stop forming. Have I done the right thing if I feel this low afterwards?

Thing is with mental health problems, how can you accept the love from someone else when you can’t accept it from yourself. 

It’s time to fall in love with myself. And then hopefully I’ll figure the rest out. 

Thank you. 

Abigail J 

                                X  X  X

Posted in anxiety, Autsim

PDA’ers Anxiety..

Hola (take twenty – six) Amigos!

I’ve had a lot of blog posts whirling round my mind recently and I’m not too sure why..so far these resolutions are working perfectly though as I’m sticking with my blog and even if I’m not posting everyday I’m replying to individual emails and thinking of new ideas. Another new years resolution was for me to not bite my nails and I also haven’t done that since last year (although only 16 days ago this is still a very proud time for me) So as I’m typing this up I’ve got freshly painted nails and I’m feeling on top of my life, for now, atleast.

I guess one thing I wanted to touch upon was the idea of teachers and their perspectives of PDA. Many believe that there’s an extreme avoidance of demands due to the desire to be in control of a situation, don’t get me wrong all PDA’ers beg to be in control of anything they’re put into but it’s not quite as simple as that. My teachers in primary school were always made aware of my PDA and because of this they’d but me as ‘team leader’ in group tasks thinking they were helping me out but infact it turned out quite the opposite for me – I hated it. As much as we want to be in control of our own situation it doesn’t mean that we all want to control everyone else around us. I know the severity of controlling others comes across differently in each different case – as does everything else – but it’s not always as common as one might seize to believe.

Since I remember I’ve craved to be ‘normal’ to be hidden at the back of the room when everyone else desires to be in the centre. I’ve kept the anxiety building up all day just to come home and cry myself to sleep – my best way of relief. I’ve never made a show of myself anywhere but inside my home because judgement is my biggest worry. The thing with PDA is it very much goes one of two ways – you either crave to be the centre of attention or to be in the back where no one notices you; it’s always black or white, it’s never grey for us. It’s always an obsession or we’re not interested.

On that note, so many times parents have got in touch with me and we’ve spoken about how their child fought with their life for something to then get it and not seem the least bit bothered. It’s so easy for us to get an obsession, to want a certain something with all we’ve got to then get it and be bored. I think for PDA’ers it’s the determinism that keeps us fighting everyday, it’s the battle that goes on between our minds and our hearts. We don’t want to face any demand yet we do, every single day because what other choice do we have? I think it’s vitally important that we fight for whatever we want, even if we give it all up after.

The determinism inside us gives us the strength that others don’t necessarily have because when you’re battling and fighting with the brain that controls you everyday why do you want to be in control? why do you not want to be in control? That’s where we differ; some of us want to get rid of this sudden possession of control when it’s given to us because we’ve never had it and some of us want it so bad just to get a taste of what it’s like to have that control placed in our hands.

And I really do believe at the end of the day that is where every single person with PDA mostly differs, it’s the complete ignorance of power or it’s the everlasting wanting for it. Is it the anxiety that makes us want to be able to control the PDA or is it the PDA that begs for us to control our anxiety. Either way we are all fighting for a release from a brain which constantly argues with simple everyday tasks. Many teachers, social workers, psychiatrists etc all believe that our want for controlling demands is because we like the feeling of being in charge, but perhaps we just like the idea of the anxiety leaving us for a while we focus on other tasks.

Because does anxiety trigger the worse days of our demand avoidance or does demand avoidance down days trigger the worst anxiety?

Thankyou – abigailbrookshalling@gmail.com (you know the drill by now)

Abigail J

 X X X

Posted in anxiety, Autsim

PDA traditions (for me anyway)..

Hola (take twenty – six) Amigos!

I seem to be endlessly drafting blogs at 1am because that’s when my writing mind seems most alive, draft after draft I delete trying to use the perfect words to sum it all up. The conclusion is though how do you sum up things you don’t fully understand. Does anybody fully understand PDA? Or is it an ongoing battle between the mind and the demands that are faced to us everyday? Is there anything that eases it? If only time could help it fade. It’s hard to sit down and condense all your thoughts into one post when there’s so many questions whirling round your mind on a daily basis. I guess for the last couple of days though I’ve been trying to piece together my personal childhood experience with PDA.

This all started when reminiscing and looking through all the old family photos with my boyfriend (although half the time he got bored and paid no attention to me aww’ing and coo’ing over memories that were so long ago yet so distinctive in my mind) thing is, I’ve always had good memory, there’s moments I can remember from long long ago, but some bits in particular stay most prominent. It’s almost embarrassing to admit this but by now what have I really got to lose?

My childhood started off on a whirlwind of adventures for both my mum and dad who’d parented my 2 older siblings before getting to me and thinking where the hell have we gone wrong? Thing is I created challenges for them that they never expected, made them develop in ways that cannot be imagined and made them make decisions that weren’t easy..but did I know it then? Nope, of course I didn’t. Every parent or guardian knows the weird and judgemental looks your child (especially those with autism) can get; kids walk past glaring because they’re doing something different and even fully grown adults think they have the right to question your parenting style when they just don’t get it. This happened to my mum with these few things in particular…

I had my ‘ninny’ aka dummy aka pacifier aka I don’t know just that thing babies suck from when I was born until my 7th birthday. Yep, it’s true, until I was seven. I know this seems insane and I can imagine the thought process going through your mind right now but for me? It stopped a crazy amount of anxiety. Mum tried on numerous occasions to help me get rid of them, one Christmas Eve when I was 4 I gave them all up ready for the elves to take away with them..only problem is I was so scared of Santa and my anxiety was so high I needed the ninny back that could calm my deepest of nerves. (Me being scared of santa is a different story for a different day – I cannot stress enough how badly I dealt with dressed up people and to this day that phobia remains) after this mum tried and tried to help me get rid of this little sucking thing that was starting to get embarrassing for her and I. But it was just hopeless. I needed it, as much as my mum needed me to calm down, as much as the night needs the moon, I needed that ninny to stop all those anxieties creating a tornado in my head. It was at 7, when I finally gave it up, one day I walked downstairs with all of them in my hands and handed them over..needless to say I don’t think my parents quite believed the sight they were seeing in front of them. Not only was I giving the one thing they thought I never would give up without argument (finally!) I was carrying about 30 dummy’s in my hand, considering I slept with 4 every night, which I physically still don’t understand how is possible.

Another thing I held onto, until an ‘abnormal’ age was my pram. It was an older kids version obviously but within that little seat I could hide away. It was a major deal for me and at the age of 2 I knew how to pull the prams hood right down and hide from the world, which is what I did until I was 7. The thing is with PDA, if the demand is to stop doing something it makes you reluctant to give this one thing up. I always hear mum say now ‘it just wasn’t worth the fight with you’ which makes so much sense I guess, I would fight all day with her about important stuff, at the end of the day what’s the problem with a pram and a dummy as long as you can deal with the judgement. Luckily I didn’t see the beady eyes of judgmental a**holes as I had the hood pulled so far down all I could see was the navy blue chequered pattern it held above my eyes. It’s so weird to think that the prams seat was also like my cave; my hideaway from the rest of the world. Sometimes I would do anything to be pushed around in that again without any eye contact to the rest of the world but reality hits and at 16 I really can’t afford to be in a pram and I most definitely wouldn’t even want a dummy now.

Did anyone else have little things like this that elongated more than ‘usual’ children?

Another thing which is slightly different but also common in many autistic children was my inability to smile. Back then all my school photos are of me screaming and crying my eyes out which even breaks my heart to look at. But when I was genuinely happy you cannot tell by the awkward emotion shown on my face. I struggled so much to smile and that clear distinctive smile didn’t really come on until I was 8 if not older. I realise how unusual this must seem to people who caught on how to smile since they were 6 months old and laughing with their parents as they repeat the sounds ‘mama’ ‘dada’ while pride bursts out of the parents eyes all condensed into laughs at the precious little bundle of joy that lay before them. But for me? It was virtually impossible.

I guess looking back through old photos has made me realise the different things I did to the usual life of children the same age as me. With a pram and a dummy still  attached to me when I was well into my seventh year it makes you wonder why I had such a connection? Why did them two things bring me such a relief? It was also nice to see my boyfriend not question it – although knowing my anxiety is bad which was my excuse for my ninny he doesn’t know the rest. I imagine at the time I had countless weird looks and many times my mums parenting was scowled upon, but perhaps it is worth noticing that ‘some battles just aren’t worth fighting’ (especially when a child with PDA is involved).

I guess what I’m trying to say is pick your battles correctly, sometimes it’s easier to lose and have your peace of mind rather than making it harder for the one on the autistic spectrum. Especially those with PDA who suffer terribly from all the demands given in a usual everyday setting.

Thank you – email me abigailbrookshalling@gmail.com for any advice, tips or just a friendly ear to listen.

Abigail J

X  X  X

The learning of the smile.
The dummy and pram (the worst part is I still nap like this now)

Posted in anxiety, Autsim

PDA symptoms..

Hola (take twenty – five) Amigos! 

How good am I getting with my updates – moment of appreciation please!! I’ve heard lots of feedback from many parents of those with PDA and I’ve felt extremely helpful this week so please don’t panic about getting in touch with me if you have questions lingering. It means a lot if I can help and I usually get back to emails on the same day! 

The most often people I’ve heard from is those who’s child is going through the ‘PDA diagnosis stage’ one that is of course a struggle. Some are asking the type of ‘symptoms’ that seem common so today I thought I’d get it all out on here. 

Biggest symptom of PDA – of course, self explanatory – is the extreme avoidance that your child experiences when faced with a demand. This can be dealt with in different ways. When I was younger being told to simply ‘eat’ ‘put my shoes on’ or ‘go to bed’ sent so much stress into me that I was unable to function. My mum soon realised this was working against me and started using games. I still remember to this day ‘get your PJs on and see what letter in the alphabet I get up to’ I’d then rush upstairs and try to get back down before she got to G, which was almost impossible I won’t lie! When it came to eating I had the average bob the builder and Tweenies plates with my food on and mum would say ‘oh what’s the picture underneath abbi?’ And I’d eat so quickly that mum would see the picture within a minute of asking..of course it was always the same picture but it very much worked for me. I definitely recommend turning the demands from imperatives to a game as this helps the mind relax and your child won’t feel forced into doing something they don’t want to do. 

Another very common symptom – high levels of stubbornness. Many parents whom have got in touch suggest their child’s stubbornness when being asked to do what they don’t want to. This, of course, could be confused with the genuine actions of a child but those with PDA will see an amount of stubbornness that you never knew existed. This is when many struggle with what to do, the best ways to overcome this is to make sure there’s a fun activity that they want to do after they’ve done what they don’t want to do. When I was younger and my mum took my to the ‘special’ dentist they were sure they would get me to open my mouth saying that no one had beaten them in 30 years and guess who beat them? Me. Although, funny now, just goes to show many don’t understand the seriousness of PDA and how they can be stubborn. It took me until I was 8 to get my mouth open for a dentist! Another time when I went to sensory class due to my hatred of touching anything that looked slightly different, such as jelly, sand etc. The woman again promised there was nothing wrong with me and I’d touch the food after a few plays with some toys. Me, yep me as a 2 year old, picks up my plastic chair and sits on the other side of the room. Lesson: never underestimate a child with PDA when it comes to their stubbornness. 

In turn the anxiety goes to anger. Of course those with any type of autism struggle more with their anxiety and it’s no different for those struggling with PDA! After simple demands causes us to feel like our head is in uproar it is no surprise that anxiety can be extremely high. Especially after a day of doing something they really didn’t want to – this could be a hospital appointment, school, going somewhere or even something as simple as having an argument with someone. This only encourages anxiety until the PDA’er will go into automatic shut down and it will either result in anger or sleep. 

Lucky enough for my parents after a stressful day I shut myself off and sleep but there will be many who will turn to anger. Ways to deal with this? Ignore them. Don’t give them what they want as that teaches them stropping will always work, it may seem easy at that time to give them it just to shut them up but when possible I highly suggest ignoring them. Once you shut them out and carry on as if it’s not happening they will either scream themselves to sleep or realise they’re getting nothing out of it! 

You can tell if your child has PDA by an automatic shut down when any demand is mentioned, even those simple ones that seem stupid to be angry at. Some people’s brains are wired up like that and you just have to accept it and find ways to cope with it. 

I hope this helps to all the parents who are emailing me currently. 

Thank you!

Abigail J 

                              x  x  x

Posted in anxiety, Autsim

New year, new me 

Hola (take twenty-four) Amigos! 

Would the blog be in true abbi fashion if I don’t apologise 73772 times for leaving it so long. I know I know it’s bad and I’m sorry but ‘new year, new me’ and all that and as I’m now an English lit a level student it’s time I get my act together. 

So believe it or not a lot has happened in this very long time since I last updated. About the job I put last time..well yeah I quit it before it even started. The night before I completely freaked out and had to quit. Too much too soon I guess, I’ll figure it out but right now I’m not in the right mind for a job. And at first the guilt made me feel awful but over time I’ve come to realise that sometimes you have to do whatever makes you happy and at the moment having a job would add stress with demands and PDA. 

Other major news I’ve now told 4 real life people about my PDA! They’re my closest friends and I did it and not once did I get a funny look. I had the most amazing support and they couldn’t even believe it. I was called brave and what not and even though I don’t feel brave because those with PDA know that you just have to get on with it, it was so nice to know that I wasn’t judged. If anything I feel so much more comfortable knowing I can speak to someone about it when things get tough. So if you haven’t told anyone or you’re debating telling them something that seems like a major friend breaking deal, I promise you it’s not. It’s the best thing I’ve ever done. And if you lose friends because of them..they didn’t deserve you in the first place! 

Thirdly, new year aye! Time to get everything back on track. Today I ordered the ‘happiness planner’ although £40 is a hell of a lot of money there’s an app that’s also free called happiness planner..which I recommend to begin with! It’s basically a diary but with special pages where you set goals for in 10 years, 5 years, 1 year and even 1 months time. Everyone says every year they’re going to get their life together and does it ever happen? No. But this year it’s time to get back to the gym and sort out both my mental and physical health out.

Thank you! Sorry for a rambling one. I’ve got the app on my phone so will keep short snappy updates from now on. 

  Abigail J 

                                X   X  X

P.s if this isn’t hope that this blog will be updated regularly this year I don’t know what is. New email just for blogging and helping anyone. It’s abigailbrookshalling@gmail.com so I can check on it regularly without seeing all of new looks new offers etc. Please email me on that one as others I might not see! 

Posted in Autsim, Uncategorized

I got myself a job..

Hola (take twenty-three) Amigos!

So, I guess I need to update you because surprisingly it’s been about 3 weeks and for once in my life and exciting things have happened.

Sixth form..not a lot to say, don’t dislike it, don’t like it but it’s slowly bringing back my independence. It started off bad as they dropped the ‘health and social’ option which is one I was really excited for but now I only do 3 subjects instead of 4 and it gives me 20 hours of frees a fortnight so it’s worked in my favour, now I’ve got crap loads of work the extra frees are serving me good and I don’t really have to do any work at home. Psychology I am really enjoying and finding everything so interesting and believe it or not all my teachers are okay! The only thing I’ve hated so far is the dress code, girls have been sent home left, right and centre for their skirt..right you think thats bad, let me mention the ones sent home because ‘their bra strap is visible’ ‘there’s too much shoulder on show’ ‘legs should be covered with tights’ ‘there’s too much skin appearing’ this has genuinely made me grit my teeth at times, I’ve been told off on several occasions for stupid remarks like this and the sexualising of girls clothes right now is driving me insane. Shoulders aren’t turning anyone on, not distracting any learning, or even making a boy look your way..but you telling me to go home and get changed while screaming at me and embarrassing me infront of my whole year isn’t distracting anyone? Really, this is another argument for a different day and possibly even a different blog so I’m going to leave it at this, but the teachers want to thank their lucky stars that no ones sent me home yet because God only knows who’s going to stop my mum screaming.

Anyway, onwards and upwards hey! First things first (or by now second things second) I’VE ONLY GONE AND GOT MYSELF A JOB! That one I applied for the other week asked me for an interview the following day and phoned me two days later to offer me the job, I start Sunday! The interview wasn’t as scary as films and that make out, the first one isn’t that bad at all..not even for me and I’m so shy! The two girls interviewing me were lovely and I answered each question fast and confidently, it was so good to know I’d achieved something, even if I didn’t get the job I would’ve been proud enough that I tried, and then I got it! However good it felt at the start the sooner Sunday 18th comes the more scared I get, but all I have to do is deep breaths and focus on the task infront. It’s training on the shop floor to begin with and I’m more nervous that I’ll take ages and customers will get annoyed, but everyone has to start somewhere, right?! So hopefully all will be okay in that department.

Another major thing that I’ve recently heard, unsure if it’s rumours but it was done by a specialist so unsure if it would be?! They’re trying to stop the diagnosis of PDA. I know, it makes you sick because for those of you who don’t know PDA isn’t like any other Autism, just as Asperges isn’t the same as ADHD, no two diagnoses are the same and no two people are the same. I’m honestly pretty much speechless about it at the moment because I just don’t know what to say, you can’t get rid of an autism just by removing the label, just as you can’t get rid of cancer by removing the name. PDA won’t just disappear because they stop diagnosing people with it, it’s just going to make the already existing fight for help even harder. They won’t be able to class those with PDA as those with ‘Asperges’ or any other diagnosis, it’s here for a reason..you can’t just decide it doesn’t belong or exist anymore. If they get rid of the name, they’ll have to make another one and that’s going to have to be introduced and understood. Just seems like such havoc for nothing.

Got many lovely comments the past few weeks so thank you, honestly means the world. You know the drill by now – absbh101@gmail.com.

Thank you,

Abigail J

x x x

Posted in anxiety, Autsim, Daily update

My GCSE results..

Hola (take twenty-two) Amigos!

This is unfortunately getting into a bad habit..everytime in my last few blogs I seem to start them with ‘sorry’ and I am genuinely sorry..I say it from the bottom of my heart when I apologise for my useless updates with my blog. It’s annoying because it’s not as if I don’t think about it, I constantly find myself telling my one friend that knows about this blog that I must do it, but finding enough time to make a perfectly edited blog seems to take a while at the moment. However, I am sorry and it’s the way I am to have to get it perfect so you’re going to have to put up with it unfortunately! Hopefully one day in the near future I find myself keeping you lot updated when I get going with it because I know I cannot help people if I don’t post updates so here I vow to you I shall try my very best.

I’m unsure where to start this blog..it’s been a crazy few weeks/even months since I’ve last updated. I thought the longest summer holiday I will ever have would see me having so much free time to write but it’s surprisingly left me with the opposite. Whether I’ve been on holiday, out with friends, trying to see my boyfriend in between his many holidays, celebrating my birthday, doing sixth form homework (which seems to have taken over my life) and catching up with all my family! I have certainly kept busy, however these are not good enough excuses at all, so I’ll cut to the chase.

I guess the first place to start is with something that happened this Thursday, I’m sure many of you were aware it was GCSE results day, and it was finally my year to go up and collect my results. It was strange, the day and night before left me full of nerves and suspense, as expected, but that bit more due to my anxiety and Autism. The next morning came, after I finally slept through the night, and with this came the usual nerves. As always, ever the early person, I made Mum get me to the school gates for 9am, when they would open. I scrambled in, locating the A-C surname area and queued up, talking to a few of my friends. Eventually each person before me seemed to have disappeared with their results and it was my turn to get my very own. The teacher found my name and handed them to me giving me the best of luck, as many people around me hurriedly went into their groups of friends each opening and comparing their results, screams filled the hall with comments such as ‘NO WAY DID YOU GET AN A IN MATHS, WHAT EVEN’ to ‘OH MY GOD I MANAGED TO GET A D IN FRENCH’ Not wanting to stop I tried to escape outside to my Mum so I could open them in peace, after a few conversations with friends (whom many were also going to their car to open their results) and a few teachers asking me what I got and then realising I hadn’t opened them yet, s0 instead wishing my a brief good luck. I exited the school doors and with nervous eyes I spotted my Mum, although my original plan meant opening them in the car (just in case!) knowing they were in the envelope in my hands left me with too much suspense to wait any longer and I slid out the very, very important and precious piece of paper..

After 13 years of forcing me to go into school ignoring my tears and my strength to refuse, I can tell you now I have never been more grateful for my Mum doing this. Today, I still realise how hard it must’ve been for her. She put her upmost confidence in that I could achieve anything, especially those things people would say I couldn’t. As a young child I was told I would never walk and would have a very limited vocabulary. My Mum ignored what many doctors told her and went and got me my very famous (in this house anyway!) ‘little red boots’ of which were put on me as soon as I awoke and taken off only when I bathed just before bed, by 1 I was walking and getting up to all the mischief any usual child was. My talking definitely came later than what is considered normal and with my first word being a continuous spell of ‘no’ followed along with a shake of my head, you’d think my Mum would give up, however eventually more words followed on, I had the usual ‘mumma’ ‘dadda’ and ‘nanna’, with my sister being known as ‘lala’ (as she was known as ‘Lou’.) At the age of 3, I was in nursery and I could easily have a conversation with anyone, aslong as I was confident enough. Again, my Mum had helped me prove the Doctors wrong. No way in hell would she fall at the last hurdle and keep me out of school as it was the ‘easiest thing to do.’

I know different parents and different situations lead to different answers and opinions but from my point of view I am full of gratitude for what my Mum made me do. Although I used to scream and cry, oh god did I hate her for it, I have just come out with 9 GCSE’s..and I did 9 subjects. I passed every single subject with ease. My results included 4 A’s, 4B’s and only 1 C (in German). For the first time in my life I felt proud of myself, proving everyone wrong like I had been brought up to do, I had completed my exams, passing every single one and I am now off to my first choice of sixth form. Come September 5th I will be where I want to be, learning Psychology, Health and Social Care, English Literature and History.

For this, I have no one to thank but my parents who ignored the ‘advice’ of Doctors, Councillors, Psychiatrists, along with other ‘know it all’ parents and every other bugger else and here I am. Everyone who said I wouldn’t be able to achieve much now has to witness me going to sixth form, heading for my place in Uni, this means so so much to me and my parents. With my Mum’s determination from the start, I have grown up in the aspiration to carry her traits and I am getting there. Confidence is key, I used to have none, now I have some, although only limited, you have to fake it until you make it angels. I have never felt the immense proudness for myself like I did when I picked up those results.

After reading them I had to go straight to apply to my sixth form, knowing I’d got everything I needed to for my subjects was such a relief for both me and my Mum, that B I needed in Science to study Psychology..I only went and bloody got! Filling out the forms with each grade I then handed them in, the teacher checked I had everything I needed and was quick to say ‘This is a beautiful set of results, you should be so proud of yourself’ and for the first time ever I agreed.

Today, also was a big step for me, handing in my CV to a work opportunity, I never thought I’d hand one in especially at only 16, so now I’m waiting to hear back..knowing full well whatever will be is meant to be. Sixth form and Work aslong as the extra homework and keeping social is going to be a struggle but I am fully capable of doing it, and I know I am. If I start to struggle too much I know I can just quit the job, but for now let’s see how it will work (literally!) out.

Again, I am truly sorry for the delay in an update..this post was definitely one I wanted to get right.

From a 6 month old being told I never would talk..I just got an A in English Language and an A in English Literature, which I am now taking further at A level, I think that’s enough motivation for anyone out there to know they can do absolutely anything if they put their mind to it.

All emails (absbh101@gmail.com) are very welcomed and replies are a lot quicker than blog updates, I promise! I’ll try and get this blog sorted with recent updates though, as long as sixth form and work aren’t draining me too much, I’m not making any promises! However, I know it’s time to get my head in gear..and this blog is studying right? Basically Psychology, Health and Social Care and English Lit all in one right?!

Thankyou so much for reading this whole blog and being so supportive.

I love you all,

Abigail J

x x x